Duchenne.

The other day I experienced something great in the midst of a terrible disease.
I watched a little boy get to throw out the first pitch at a baseball game.
It was a rather moving moment in the most uncorny way possible.
It was beautiful actually, because if it wasn't for my husband, this little boy would never have got to experience that. And to me that moment was worth more money then we will probably ever raise.
But I also felt sad, I do not think that Matt's life is boring by any means. I think considering his curcumstances we do alot, we live a pretty normal life. We probably have more medical equipment in our home than a "normal couple." Thankfully though most of it is for those "in-case" moments.
But I felt sad thinking about all the things that this little boy and other little boys and even girls that have Duchenne Muscular dystrophy will have to miss out on. And how left out they may feel. And I hope that they all have parents and friends that go the extra mile to make them not feel that way. Matt said something to me once that I will never forget. When we were dating he told me that dating me made him forget that he was handicapped. Imagine that. I think its because I don't let it limit what we do, or stop us from enjoying life. Yes there are still things that he can't do, but I still take him along and let him enjoy all those things if possible, and it helps that I have a family that is willing to help, and include him in everything we do. And I think that is how it should be, no one should get left out because they are "different." I think this is a really good quote. “You can have anything you want if you will give up the belief that you can't have it.” - My husband Matt has always believed that he would find a woman that would take care of him, and get married, and it happened. I believe in his case that he found this cause he never gave up hope and believe that he really could have it. Alot of times we want things but don't believe that we deserve them. I heard a saying once, that the things you fear you draw to you. I'm not saying that it always happens that way, or that something terrible that happened to you is your fault, but sometimes this is very true. So just don't give up hope for your dreams. or your dreams for your kids. Even when it doesn't look like it will never happen, don't stop Believing. :) (Yes I know that is a song)