My experience with Dr.Rhodes Vecttor treatment.
As you all know my husband Matt has Duchenne Muscular Dystrophy. When we were dating he had informed me of a doctor in Corpus Christi that was using a machine that used electrodes on accupressure and accupunctures points sending electricity through the body which helps with oxidative stress. Oxidative Stree is what keep utrophin from developing which is the back-up for dystrophin. Dystrophin is the protein that helps your muscles rebuild. People who have dmd do not create any dystrophin. ( I would like to take a moment and say I am not expert on this disease or with medicine, or anything of that sort, I only have knowledge of what I have read and researched myself and learned from my husband Matt) Anyways back to my story, as Matt and I started to get more serious and felt that we both were headed on the same path and that path was marriage, I continued to research The Vecttor system and progress of other people who were using the machine. I am very optimistic, and hope constantly for Matt's health to improve, however that may happen. I do not care if he ever walks again I just want him to live a long, healthy, and happy life with me. Matt and I decided that since I already had a home and many of the things that one gets as wedding gifts, that we would ask for money instead, and travel to Corpus Christi for our honeymoon and see what all this rave over this Vecttor Machine was about. We went down to Corpus for about a week and five of those days we went into Dr. Rhodes office. While there we heard many stories about boys with Matt's disease and with Becker's as well. All of different ages. Stories that gave me hope. We saw things change immediately upon using the machine, the main and most noticeable was Matt's circulation, which has continued to get better. The Vecttor machine is very easy to use, sometimes it seems hard to fit the treatments in, but well worth the effort. We went to Corpus and Matt was evaluated and we learned how to use the machine. Dr. Rhodes has protocols which are basically different placements of the electrodes. You do a treatment on your feet and hands twice a day. each of these treatments are 40 minutes. So it about 90 minutes in the morning and the evening. After the first month you can d just one treatment in the evening if you prefer. But it does not hurt to keep doing two especially with such a life threatening disease as Duchenne. I have to say about a month into so just a few weeks ago I started to get discouraged. I was hoping that Matt would be able to use his arms again already. I know that is a big dream, and I still believe one day it will come true. Baby steps, those are some of the great awe moments, when you realize that they are getting better. I will say that Matt's heart rate has lowered. He has had resting tachycardia, meaning his heart beats at about 120-130 when he is resting it should be 80-90 he was taking metaprolol once everynight to help with this. His heart rate now stays in the lower 90's or below and he is no longer taking that medicine. Which is wonderful. Also this past weekend we went out both Friday and Saturday for different events. I believe it was on Saturday evening Matt told me he noticed he was leaning over more, he felt able to support his own weight better. Meaning that his core muscles are stronger. This is amazing. Duchenne boys are not suppose to get better, so this means that VECTTOR has to be working. I am thankful to God for this. I know that He led us to this treatment, and continues to lead us in the right direction for Matt's health. I look forward to many more good reports.
Amber
Don't miss the Beautiful!
- OwlBeHonest
- I love my husband to the moon, And am now called mama by a beautiful blue eyed boy. Life scares me and excites me all at the same time. I like making things, cooking, coffee, sushi, trying new thing and I love being married.
Wednesday, January 26, 2011
Thursday, January 13, 2011
Change
I have decided to change this up a little bit. And talk about my life. My new life. The life of a woman married to an amazing man who happens to be disabled. My husband has a very severe form of muscular dystrophy called Duchenne. It affects about 1 in 3500 boys. THey are usually diagnosed when they are young 2 to 8 years old. And with the advancement of our technology they are able to tell alot sooner than when Matt was younger. Matt was diagnosed when he was 8 and was able to still walk till he was about 13 years old. These disease usually kills most boys by the time the reach their late teens and early twenties. Most die from enlarged hearts. Matt is lucky to have a fairly normal heart. Others die from lung problems due to skeletal defects because of having to be in a wheelchair at such a young age. Matt is forturnate to be doing fairly well for someone his age. And I am forturnate to have him in my life. This has been quite a journey since meeting him. I would not say that our life together is hard, it has its difficulties. But I do not feel like my life is abnormal. We are currently in the process of Matt trying to find a job, and in the meantime looking for part time home care on our own, meaning that we would be the employer of someone who is their own contractor. We were going through medicaid. But I personally do not like the government in more of my business then they already are. Trying to control limits on how much I can save. And trying to keep you below. I want to make it without there help for as long as I possibly can. Which brings me to another frustration Health Insurance! There are so many regulations and not very many options for people who are permantely disabled. All this to say that although there may be different struggles being married to a disabled man. I would do it over and over again. Because Matt is the best thing that ever happened to me. And I know that God is on our side. And I will value all the time we have together and believe that He will lead us in the right direction that He will provide for all our needs. I believe that He lead us to Dr. Rhodes. And that his treatment can help prolong Matt's life. I also believe that the Lord could even heal Matt, And I will continue to believe that, Because I know that He brought Matt into my life for a reason.
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