Change

I have decided to change this up a little bit. And talk about my life. My new life. The life of a woman married to an amazing man who happens to be disabled. My husband has a very severe form of muscular dystrophy called Duchenne. It affects about 1 in 3500 boys. THey are usually diagnosed when they are young 2 to 8 years old. And with the advancement of our technology they are able to tell alot sooner than when Matt was younger. Matt was diagnosed when he was 8 and was able to still walk till he was about 13 years old. These disease usually kills most boys by the time the reach their late teens and early twenties. Most die from enlarged hearts. Matt is lucky to have a fairly normal heart. Others die from lung problems due to skeletal defects because of having to be in a wheelchair at such a young age. Matt is forturnate to be doing fairly well for someone his age. And I am forturnate to have him in my life. This has been quite a journey since meeting him. I would not say that our life together is hard, it has its difficulties. But I do not feel like my life is abnormal. We are currently in the process of Matt trying to find a job, and in the meantime looking for part time home care on our own, meaning that we would be the employer of someone who is their own contractor. We were going through medicaid. But I personally do not like the government in more of my business then they already are. Trying to control limits on how much I can save. And trying to keep you below. I want to make it without there help for as long as I possibly can. Which brings me to another frustration Health Insurance! There are so many regulations and not very many options for people who are permantely disabled. All this to say that although there may be different struggles being married to a disabled man. I would do it over and over again. Because Matt is the best thing that ever happened to me. And I know that God is on our side. And I will value all the time we have together and believe that He will lead us in the right direction that He will provide for all our needs. I believe that He lead us to Dr. Rhodes. And that his treatment can help prolong Matt's life. I also believe that the Lord could even heal Matt, And I will continue to believe that, Because I know that He brought Matt into my life for a reason.